Book

Every Note Played

📖 Overview

Richard Evans is a renowned concert pianist in Boston whose career and identity revolve around his ability to play. When he is diagnosed with ALS (amyotrophic lateral sclerosis), the disease begins to steal his music one finger at a time. Karina is Richard's ex-wife, a former pianist herself who gave up her jazz career during their marriage. As Richard's condition worsens, she becomes his reluctant caregiver, forcing them both to confront their past failures and resentments. Through Richard and Karina's perspectives, the novel examines the physical and emotional impact of terminal illness, the complexities of forgiveness, and the different ways people cope with loss. The book also explores how musicians' identities are intrinsically tied to their art, and what remains when that connection is severed.

👀 Reviews

Readers describe this as an intimate portrait of ALS that balances medical accuracy with emotional depth. The book resonates particularly with healthcare workers and those who have family members with ALS. Readers appreciate: - Details about the disease progression and caregiving challenges - Complex relationship dynamics between ex-spouses - Musical references and terminology - Medical accuracy while remaining accessible Common criticisms: - Characters can feel unsympathetic, especially in early chapters - Some find the writing style clinical or detached - Musical descriptions sometimes interrupt narrative flow - Several readers note the ending feels rushed Ratings across platforms: Goodreads: 4.2/5 (55,000+ ratings) Amazon: 4.5/5 (2,800+ ratings) Barnes & Noble: 4.4/5 (900+ ratings) "Brutal but necessary" appears in multiple reader reviews. Healthcare professionals often comment on the accuracy, with one hospice nurse writing "This captures the ALS journey better than any medical text."

📚 Similar books

Still Alice by Lisa Genova A neuroscientist documents her descent into early-onset Alzheimer's disease while maintaining her relationships with family.

Left Neglected by Lisa Genova A brain injury forces a high-powered career woman to adapt to a new neurological reality while rebuilding her life.

Inside the O'Briens by Lisa Genova A Boston police officer and his family face the genetic inheritance of Huntington's disease.

When Breath Becomes Air by Paul Kalanithi A neurosurgeon chronicles his transformation from doctor to terminal cancer patient.

The Last Lecture by Jeffrey Zaslow, Randy Pausch A computer science professor with terminal pancreatic cancer reflects on life while preparing his final lecture.

🤔 Interesting facts

🎹 Author Lisa Genova holds a Ph.D. in neuroscience from Harvard University, bringing deep medical authenticity to her portrayal of Richard's ALS diagnosis and progression. 🧬 The book's detailed descriptions of ALS (amyotrophic lateral sclerosis) were informed by extensive research, including the author's time spent with multiple ALS patients and their caregivers. 🎼 The protagonist's profession as a concert pianist was inspired by renowned pianist Vladimir Horowitz, who was known to say he needed to practice four hours a day just to maintain his skill level. 💉 The novel accurately depicts how ALS typically progresses: 50% of patients die within 3 years of diagnosis, 20% live 5 years or more, and only 10% survive beyond 10 years. 🏆 Every Note Played received the Goodreads Choice Award nomination for Best Fiction in 2018 and has been praised by both literary critics and medical professionals for its accuracy and emotional depth.